All We Ask is a Little Understanding

Transitions are hard for Alex. He needs fair warning if we are to leave the house, if it's time to take down the Christmas tree, or if it's almost time to turn off the movie and take a bath. Autistic children prefer order and routine. They don't like you to spring a new plan on them without plenty of advance notice. And for an autistic child of divorce, the change in households, routine, expectations, and rules can be terribly disorienting.

Alex spends every other weekend with his mother in Indianapolis (and usually one night of that with her parents in town) and those Sunday nights when he comes home can be so frustrating for him. Last Sunday evening, he was a little fired up when he came home from his visit so I put "Bee Movie" in the DVD player in his room so that he could watch and just chill out for the 30 minutes before bed which he watched for a bit before asking for Tim. I explained and signed to him that Tim was at work but that we could call him on the phone so Alex could talk to him. While the phone was ringing, Alex signed "boat" (meaning that he wanted to watch PT109). We only have that movie on the DVD hard drive located out in the living room where Mac was reading and it was only 10 minutes before bed, so I told Alex that we could not watch it tonight but that we could watch it tomorrow. This information was more than he could handle and his little mouth opened up and he closed his eyes and just started bawling. (Of course at this moment, Tim answered the phone and wondered what the hell was going on. I quickly explained and told him we would have to call him back.) Alex came to me and put his arms around me, soaking my shoulder with his ginormous crocodile tears and I took him to his room and lay down with him, chattering all the while, trying to take his mind off of his Enormous Sad. I ended up the speaking voice for Mr. Crabs - a half French, half Spanish accent - and within 5 minutes he had forgotten all about his boat movie disappointment and was cracking up at The Silly. He talked to Tim for a few minutes before nearly passing out from exhaustion.

Last night was a similar scenario. He was still transitioning from his mom's house, add in the transition from a 2 week break, and the poor boy spent the hours between school and bed just moments away from tears and finally - I don't even remember what it was - but something tipped him just over the edge. Tim was home and took him to lie down at which point Alex fell asleep almost immediately. The first day back at school wore him out.

I hate that he has to deal with this change every 2 weeks. I hate the enormous disappointment that comes from not being able to expect the same rules and routine in each household he frequents. If all 3 households could work together to have and enforce the same rules, this problem would be lessened, but I think it's too much to ask 2 sets of parents and 1 set of grandparents to agree on what the rules are and how they will be enforced. I tell myself that on some level the frequent transition is good for him - it keeps him from becoming too much of a homebody keeping the same repetitive routine. But on nights like Sunday and Monday, we want to never let him leave our sight again. We want to form a protective cocoon around him and let him know exactly what he can expect from one moment to the next. He was better tonight. There wasn't a single tear and he was engaged and playing with Mackenzie and I.

While at my daily de-briefing with his teacher this afternoon, she said that Alex had been experiencing some behaviors (a few tears, slight aggression) but she just thought that it was just a "transition thing" unlike his last teacher, who would have put him in an extended time out, perpetuating the behaviors. We love his new teacher. She is smart and she understands Alex.